I remembered when I told my dad he had colon cancer. The surgeon couldn’t wait for my dad to wake up from the sedation so he handed me the photographs and charts. The surgeon had places to be, after all, and my dad hadn’t slept well in probably years so we all just let him […]
Tag: American health system
My Own Private Shit Show: The Art of Coping
This week’s blog is focused on the events of my daily life and how I’m using perspective to prevent them from driving me completely insane. Letting Your Car Go We paid off our car. Which means we’ve given it permission to completely fall apart. You’re free, Marshmallow. While a mechanic was trying to figure out […]
Double Life of Sorts
I have to say, as I prep for/engage in two job interviews for positions this week, I also have this little voice inside which says: “What’s the point? You’re doomed.” Well, it’s not quite that dramatic but that’s essentially its core messaging. Why? If you’re a new reader, I received the death toll of genetic […]
Genetics: Gene, Gene, Gene, Gene… GOOSE!
Pour a glass of something strong because I’m inviting you to embark upon a potentially life-changing genetic adventure with me. Or don’t read this and drink your whiskey in peace. Either way, my GP referred me to a genetic counselor last winter after I received somewhat dodgy mammogram results but the geneticists never returned any […]
When Life Gives You Lemons You Smile and Say “Thanks I Hate You Sometimes You’re a Jerk”
Right. With everything that has happened and which is actively happening, it seems my weak body is simply giving up. And my mind is absolutely disgusted with it. Watching “The Greatest Events of World War II in Color” on Netflix not only gives me the chills because we can explicitly see history repeating itself in […]
Brain Scans and Your Average Medical Male Monster
Holy cats. This blog post focuses on the monster who was my former neurologist and THE MONSTER CALLED ME WHEN I WAS WRITING THE FIRST DRAFT. Therefore, I have some LIVE ACTION news in this blog post. Exciting! But I’m getting ahead of myself. Right. So I’m an epileptic. Been epileptic since I was twelve. […]
“Is the American Health System That Bad?” Asked my Scottish/Not Scottish Friends. “Well, It Depends Who You Are.”
My husband David and I lived in Edinburgh, Scotland 2007-2010. Since his mom is 100% Scottish (though she resides in America but not in this photo because she came to visit us when we lived in Scotland), her family still lived there and we were therefore able to spend time with them. One time we […]
Is This Chemical Or Am I Authentically Feeling This Calm/Honest
Meds. 🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄 A few weeks ago I did a DIY, 72 hour EEG which revealed that I was experiencing an impressive number of seizures though I had no idea of this. But that could be just another seizure. My current neurologist believes that a lot of the actions I take are due to “seizures”. Not […]
Witnessing Tonic-Clonic, Formerly Known as Grand Mal, Seizures
There is nothing a parent can really do to stop it or make it better while a grand mal/tonic-clonic seizure is happening. But there has been progress.
Ambulatory EEG #1: Getting Creative with Quarantine Activities
My hellish week of doing an ambulatory DIY EEG at home during the coronavirus quarantine
Brain Wars!!! 