I recently had the pleasure of reading a friend’s poetry memoir regarding his experiences with epilepsy. He supplements his poetic verse with evocative photographs, and it’s creative, honest, authentic and thought-provoking. Since he’s the second person I’ve recently read about who has broken their jaw (or general “face area”) in a seizure, it made me […]
Tag: electricity
Maybe I’ll Have a Happy Electrified Ending
This blog is a little late this week because I spent Monday and Tuesday doing “real” work aka editing a grant application (for a friend but she paid me my rate and it was the closest thing I’ve done to “real” work in a long time). So that felt good. That update is for those […]
Monday: Electrodes, Needles, Nerves, Static, a Bed and Four Men and an Epileptic Crammed in a Tiny Room
I’m not going to lie. That 👆 sounds like a very messed up porn. Gross. Which is why I don’t feel a lot of people could do an EMG test. Because if you’re not “good with” needles, or have an issue with claustrophobia or with being electrocuted, or being essentially naked on a bed in […]
Brain Update: To Fall or Not to Fall
“Are you afraid of falling?” “No.” The neurological specialist nodded thoughtfully and I redirected my thoughts to reflect on how “Stephen Hawking” fell a lot in the beginning of the movie The Theory of Everything. ☹️ The reason for this rant is how I went to the dreaded appointment with an ALS specialist because I […]
All Lab Rats Go To Heaven: An Epileptic Puts Her Foot Down
2020 has not been easy for anyone. After all, even those investors and tech CEOs who made a shit ton of money in 2020 off the public health crisis like war profiteers couldn’t just roll down to their local to get a beer or bottle of Cristal without assuming some risk. Tough times for us […]
Detached: Why This Epileptic Will Never Again Do Another Ambulatory EEG
Right. So I’ve had epilepsy since I was 12. That last sentence makes it sound like going from “no epilepsy” to “epilepsy” was a smooth transition… it was not. In any case, as an epileptic (who hid her epilepsy for twenty-five years out of fear of people’s rampant inability to cope with fear and who […]
Life After
My mind is taking things into its own hands lately. I think this because on Tuesday I had some epileptic twitches in my face and through my fingers which aren’t supposed to happen. The electricity is breaking free. Oi. So I think my mind took care of that because I slept so deeply Tuesday night […]
Hell Today
I’m not sure if anyone else thinks “Have I gone too far?” as much as I do in regard to really insignificantly small actions. But I do enjoy the thought of my former keyboard’s space bar being in the ninth circle of hell. I never let my inability to draw hold me back either. Yeah, […]
Is This Chemical Or Am I Authentically Feeling This Calm/Honest
Meds. 🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄 A few weeks ago I did a DIY, 72 hour EEG which revealed that I was experiencing an impressive number of seizures though I had no idea of this. But that could be just another seizure. My current neurologist believes that a lot of the actions I take are due to “seizures”. Not […]
Ambulatory EEG Test #1 Result Day… I Am More Epileptic++ Than I Realized
Yesterday afternoon, my neurologist’s office called to tell me they downloaded the data from my first ambulatory EEG and, consequently, my neurologist wanted to see me ASAP. ASAP? Right away? Pronto? Okay. All right. Here we go. Okay. My heart dropped to the bottom of my guts. It’s not great when a medical professional calls […]
Ambulatory EEG #1: Getting Creative with Quarantine Activities
My hellish week of doing an ambulatory DIY EEG at home during the coronavirus quarantine
Brain Wars!!! 