Well well well… what has seemed impossible for perhaps five years total has amazingly happened! I’ve been offered a “real job” where I’ll be paid to do what I feel I was put on this planet to do: HELP PEOPLE WHO NEED HELP. I’ll soon start my new job as Care Manager for a small […]
Tag: health
Get It Out: Art Saves
I just got news that a rather big happening which was going to change life as my husband and I know it is probably no longer happening. It was all probably not but maybe happening… then definitely happening… and now… probably not happening once again?! Life, man. It’s a real thing. Before that ambivalent-yet-leaning-towards-bad news, […]
What Do You See?
This post is about death, grief, loss, unexplained happenings and also murals… Fair warning and, if you’re here for the murals, just scroll down to the end. The Context/Background So I wrote a ghostly storybook ⬇️ And in this book I summarize all the scary, unexplained and sometimes magical stuff which happened when my husband […]
Stigma: Epilepsy, Mental Illness and the Same Old Treatment
Reality is a fickle thing. If you don’t share the reality most others share, life is more difficult. Some people run with their “outsider” status and others fight to change and expand how their reality is seen and experienced. And still others do what they can to hide their different reality and quietly assimilate with […]
Maybe I’ll Have a Happy Electrified Ending
This blog is a little late this week because I spent Monday and Tuesday doing “real” work aka editing a grant application (for a friend but she paid me my rate and it was the closest thing I’ve done to “real” work in a long time). So that felt good. That update is for those […]
Brain Update: To Fall or Not to Fall
“Are you afraid of falling?” “No.” The neurological specialist nodded thoughtfully and I redirected my thoughts to reflect on how “Stephen Hawking” fell a lot in the beginning of the movie The Theory of Everything. ☹️ The reason for this rant is how I went to the dreaded appointment with an ALS specialist because I […]
A Prison of Possibilities
Welcome to 2021… in risk of overusing the same material, this IT Crowd gif perfectly represents how I’m feeling about 2021: Yesterday, I sat down to take a break in my Monday routine which involves doing last week’s laundry and the weekly domestic hard-clean of our apartment. I figure that, if I’m not making any […]
It’s My Birthday and I’m in Space and Won’t Be Able to Make It This Year
My birthday is this week or… technically, it’s at the very beginning of next week. For the record, it’s 10-4… you know, like in the police code. In other words, “OKAY”. I was once in the back of a police car and they said “10-4” and I said, “That’s my birthday!” I love birthdays. And […]
MENTAL HEALTH Requires … Listening to Bauhaus in My Creepy Basement with My Friend Chair
I AM FINALLY GETTING A CHEST X-RAY AND ALSO BLOODWORK! 🙌 Wooooohooooooo!!! I am so old and decrepit I regard this as a major accomplishment. I remember when winning an award or finishing my degree gave me the same sense of accomplishment. It’s a bit sad but… how does it go? Life is what happens […]
Security Bot, Ken, Having a Hard Time Like the Rest of Us
I think our security bot Ken is feeling insecure. He can join the club. Or maybe it’s just Monday again and, while reliable, its arrival doesn’t help morale. It’s especially weird because I don’t even have a “regular weekday work schedule” so I have no idea what my problem with this day is. Last week […]
When Life Gives You Lemons You Smile and Say “Thanks I Hate You Sometimes You’re a Jerk”
Right. With everything that has happened and which is actively happening, it seems my weak body is simply giving up. And my mind is absolutely disgusted with it. Watching “The Greatest Events of World War II in Color” on Netflix not only gives me the chills because we can explicitly see history repeating itself in […]
Joining the Dark Side
Well, the Bank Doesn’t Care if Your House Is Haunted is available as a lovely little DIY storybook which is printed and assembled here at home and bought through my Etsy shop… and now it’s also available on motherflipping Amazon as an e-book. That’s right, I’m continuing to join the 1990s. One day I may […]
Networking Epileptic on Edge of Death Feeling Genuinely Cared For
Woohoo! Today I had my appointment with the new neurologist who I was only able to see thanks to a friend who pulled in a favor with a prominent neurologist who then made the connection and… networking may not get me employment but it got me the best neurologist I’ve had in perhaps forever! And […]
Anniversaries and Holidays Which Evoke All Emotions
When you experience loss, you suddenly have new days to dread. Or celebrate. It depends on how you’re coping with your loss. I honestly don’t know anyone who genuinely looks forward to a death anniversary like “OH WOW IT’S ALMOST THE DAY MOM DIED. I CAN’T WAIT TO CELEBRATE HER!!!” but I’m sure you’re out […]
Ambulatory EEG #1: Getting Creative with Quarantine Activities
My hellish week of doing an ambulatory DIY EEG at home during the coronavirus quarantine
Brain Wars!!! 