This week’s blog is focused on the events of my daily life and how I’m using perspective to prevent them from driving me completely insane. Letting Your Car Go We paid off our car. Which means we’ve given it permission to completely fall apart. You’re free, Marshmallow. While a mechanic was trying to figure out […]
Tag: neurologists
When Words Don’t Cover It,1990’s Microsoft Paint Can
Words fail. That kind of thinking is detrimental for a blog. In any case, I think my logistics job is affecting my not-job-related memory, soul and verbal speech… or else… it’s not the super stressful job and, rather, the FTD/ALS is kicking in. I hope not because my job does not offer health insurance, and […]
Monday: Electrodes, Needles, Nerves, Static, a Bed and Four Men and an Epileptic Crammed in a Tiny Room
I’m not going to lie. That 👆 sounds like a very messed up porn. Gross. Which is why I don’t feel a lot of people could do an EMG test. Because if you’re not “good with” needles, or have an issue with claustrophobia or with being electrocuted, or being essentially naked on a bed in […]
Latest EEG Produced “Unexpected” Results
I started this blog last spring after experiencing my first ambulatory 72 hour EEG. Accordingly, this entry provides some updates for the health tests I’ve discussed here in previous posts and also includes my proposed take-it-into-my-own-hands solution. In addition, it presents a reminder that you never know what you’re going to get when trying new […]
Halloween in September and Improving My Street Cred
I have found the best pharmacy. And that isn’t street/code for anything… I mean I have genuinely found the best pharmacy. You know you’re old and/or sickly when you regard this as a major achievement. Maybe I’m so excited about my new pharmacy because I had such a terrible pharmacy before… so it’s relative. My […]
MENTAL HEALTH Requires … Listening to Bauhaus in My Creepy Basement with My Friend Chair
I AM FINALLY GETTING A CHEST X-RAY AND ALSO BLOODWORK! 🙌 Wooooohooooooo!!! I am so old and decrepit I regard this as a major accomplishment. I remember when winning an award or finishing my degree gave me the same sense of accomplishment. It’s a bit sad but… how does it go? Life is what happens […]
Detached: Why This Epileptic Will Never Again Do Another Ambulatory EEG
Right. So I’ve had epilepsy since I was 12. That last sentence makes it sound like going from “no epilepsy” to “epilepsy” was a smooth transition… it was not. In any case, as an epileptic (who hid her epilepsy for twenty-five years out of fear of people’s rampant inability to cope with fear and who […]
Networking Epileptic on Edge of Death Feeling Genuinely Cared For
Woohoo! Today I had my appointment with the new neurologist who I was only able to see thanks to a friend who pulled in a favor with a prominent neurologist who then made the connection and… networking may not get me employment but it got me the best neurologist I’ve had in perhaps forever! And […]
Anniversaries and Holidays Which Evoke All Emotions
When you experience loss, you suddenly have new days to dread. Or celebrate. It depends on how you’re coping with your loss. I honestly don’t know anyone who genuinely looks forward to a death anniversary like “OH WOW IT’S ALMOST THE DAY MOM DIED. I CAN’T WAIT TO CELEBRATE HER!!!” but I’m sure you’re out […]
“Is the American Health System That Bad?” Asked my Scottish/Not Scottish Friends. “Well, It Depends Who You Are.”
My husband David and I lived in Edinburgh, Scotland 2007-2010. Since his mom is 100% Scottish (though she resides in America but not in this photo because she came to visit us when we lived in Scotland), her family still lived there and we were therefore able to spend time with them. One time we […]
Brain Wars!!! 