Another week of being alive! Huzzah! That opening makes it sound like this week’s blog post is going to be exploding with good news and joy. I’ll do my best. Lately, my neurological realities have been on my mind and I’m trying to feel really grateful for the time I have. That’s not meant to […]
Stigma: Epilepsy, Mental Illness and the Same Old Treatment
Reality is a fickle thing. If you don’t share the reality most others share, life is more difficult. Some people run with their “outsider” status and others fight to change and expand how their reality is seen and experienced. And still others do what they can to hide their different reality and quietly assimilate with […]
SYSTEM ALERT: Is What Happened to My Mom Going To Happen To Meeeeeeeeee?
Why have a blog if you can’t use it to openly discuss the potential manifestation of your absolute worst fear? 😺 Yeah. This is the blog post I really avoided writing and here it is. In this post I’ve tried to bedazzle my worst fear and all my fretting and freaking out with pictures and […]
Detached: Why This Epileptic Will Never Again Do Another Ambulatory EEG
Right. So I’ve had epilepsy since I was 12. That last sentence makes it sound like going from “no epilepsy” to “epilepsy” was a smooth transition… it was not. In any case, as an epileptic (who hid her epilepsy for twenty-five years out of fear of people’s rampant inability to cope with fear and who […]
My mind is taking things into its own hands lately. I think this because on Tuesday I had some epileptic twitches in my face and through my fingers which aren’t supposed to happen. The electricity is breaking free. Oi. So I think my mind took care of that because I slept so deeply Tuesday night […]
Genetics: Gene, Gene, Gene, Gene… GOOSE!
Pour a glass of something strong because I’m inviting you to embark upon a potentially life-changing genetic adventure with me. Or don’t read this and drink your whiskey in peace. Either way, my GP referred me to a genetic counselor last winter after I received somewhat dodgy mammogram results but the geneticists never returned any […]
When Life Gives You Lemons You Smile and Say “Thanks I Hate You Sometimes You’re a Jerk”
Right. With everything that has happened and which is actively happening, it seems my weak body is simply giving up. And my mind is absolutely disgusted with it. Watching “The Greatest Events of World War II in Color” on Netflix not only gives me the chills because we can explicitly see history repeating itself in […]
Looking for a Good time? Me Too.
Wellity. Got my MRI results. Ugh… lots of white matter lesions 😬 BUT there aren’t any more lesions than there were in 2015, when I had my last brain scan. Sooooooooooooooooooooooooooooooooo… I received the nicest call from my new neurologist’s nurse who I speak to almost daily and… well, it’s comforting that we don’t know […]