My dear Bird Best Friend made me a feature item for my “desk” at work. I asked her to make me one because it reminds me of exactly how I feel in my new job as a state social worker: Crazed Overwhelmed Trying desperately to do good and spread joy and wellness but… I will […]
Tag: ALS
Nuclear war?
We live in a globalized world. What’s happening to a country on the other side of the world affects the lives of those living in countries on the opposite side of the world. While bombs aren’t falling on my head, seeing them fall on civilians in Ukraine is nauseating and feels super close somehow. I […]
The Revelations/Revolutions of June
There’s those days of self-pity where you just have to crash out Les Misérables’ I Dreamed a Dream on the piano and make your dog serve as unwilling witness. Speaking of the dog, June Carter Cash has just started eating on her own. This is a revelation. I came home from work late one night […]
The Olympics of Every Day
Another week of being alive! Huzzah! That opening makes it sound like this week’s blog post is going to be exploding with good news and joy. I’ll do my best. Lately, my neurological realities have been on my mind and I’m trying to feel really grateful for the time I have. That’s not meant to […]
My Own Private Shit Show: The Art of Coping
This week’s blog is focused on the events of my daily life and how I’m using perspective to prevent them from driving me completely insane. Letting Your Car Go We paid off our car. Which means we’ve given it permission to completely fall apart. You’re free, Marshmallow. While a mechanic was trying to figure out […]
When Words Don’t Cover It,1990’s Microsoft Paint Can
Words fail. That kind of thinking is detrimental for a blog. In any case, I think my logistics job is affecting my not-job-related memory, soul and verbal speech… or else… it’s not the super stressful job and, rather, the FTD/ALS is kicking in. I hope not because my job does not offer health insurance, and […]
Milwaukee Paranormal Conference! 👻
When my amazing, award-winning journalist/writer friend Tea (check out his latest book which I highly recommend: https://thebookselfblog.wordpress.com/category/tea-krulos/) asked me to be a panelist in the Milwaukee Paranormal Conference in September: I said “Yes.” As part of this event, I’m also being given a vendor table so… this is all very amazing. Because, at this fine […]
Maybe I’ll Have a Happy Electrified Ending
This blog is a little late this week because I spent Monday and Tuesday doing “real” work aka editing a grant application (for a friend but she paid me my rate and it was the closest thing I’ve done to “real” work in a long time). So that felt good. That update is for those […]
Monday: Electrodes, Needles, Nerves, Static, a Bed and Four Men and an Epileptic Crammed in a Tiny Room
I’m not going to lie. That 👆 sounds like a very messed up porn. Gross. Which is why I don’t feel a lot of people could do an EMG test. Because if you’re not “good with” needles, or have an issue with claustrophobia or with being electrocuted, or being essentially naked on a bed in […]
Curs-ed and Coping
Yeah, so it’s that really terrible time of year for me. The Death Anniversary time of year… oddly, my family died or were born in the first couple weeks of March. And my crisis of confidence continues as I was recently told for the nth time I’m “overqualified” and “will leave after a month” if […]
Brain Update: To Fall or Not to Fall
“Are you afraid of falling?” “No.” The neurological specialist nodded thoughtfully and I redirected my thoughts to reflect on how “Stephen Hawking” fell a lot in the beginning of the movie The Theory of Everything. ☹️ The reason for this rant is how I went to the dreaded appointment with an ALS specialist because I […]
Double Life of Sorts
I have to say, as I prep for/engage in two job interviews for positions this week, I also have this little voice inside which says: “What’s the point? You’re doomed.” Well, it’s not quite that dramatic but that’s essentially its core messaging. Why? If you’re a new reader, I received the death toll of genetic […]
A Prison of Possibilities
Welcome to 2021… in risk of overusing the same material, this IT Crowd gif perfectly represents how I’m feeling about 2021: Yesterday, I sat down to take a break in my Monday routine which involves doing last week’s laundry and the weekly domestic hard-clean of our apartment. I figure that, if I’m not making any […]
All Lab Rats Go To Heaven: An Epileptic Puts Her Foot Down
2020 has not been easy for anyone. After all, even those investors and tech CEOs who made a shit ton of money in 2020 off the public health crisis like war profiteers couldn’t just roll down to their local to get a beer or bottle of Cristal without assuming some risk. Tough times for us […]
SYSTEM ALERT: Is What Happened to My Mom Going To Happen To Meeeeeeeeee?
Why have a blog if you can’t use it to openly discuss the potential manifestation of your absolute worst fear? 😺 Yeah. This is the blog post I really avoided writing and here it is. In this post I’ve tried to bedazzle my worst fear and all my fretting and freaking out with pictures and […]
When You Get the Results You Really Really Really Didn’t Want
For those of you reading this, I want to thank you for being a small audience for my survival memoir writing. In contrast to social media, having a blog is like having an audience who mostly want to be there. I’m sure a few of you just logged off because you’re all ohshit I can’t […]
The Man in the Moon 🎃 and Being a Libra♎️ in a Civil War
It’s probably not smart to stare at a full moon for five consecutive minutes without being equipped with mystical intention or having incantations in hand. Because the moon is a quietly influential celestial body. Yet, last night I simply couldn’t look away, feeling safe and uncharacteristically warm inside our shitty apartment. And the moon wasn’t […]
Genetics: Gene, Gene, Gene, Gene… GOOSE!
Pour a glass of something strong because I’m inviting you to embark upon a potentially life-changing genetic adventure with me. Or don’t read this and drink your whiskey in peace. Either way, my GP referred me to a genetic counselor last winter after I received somewhat dodgy mammogram results but the geneticists never returned any […]
Brain Wars!!! 