There’s those days of self-pity where you just have to crash out Les Misérables’ I Dreamed a Dream on the piano and make your dog serve as unwilling witness. Speaking of the dog, June Carter Cash has just started eating on her own. This is a revelation. I came home from work late one night […]
Tag: medication
Dexters Are Motherflipping EVERWHERE!
I figured I needed to put together a light-hearted blog. So you consider a fictional serial killer “light”? Yes. Have you seen Dexter? In any case, I just got done reading twenty years of neurologists’ reports on me because I dumbly logged into my medical records database to find this lovely summary and… to read […]
Stigma: Epilepsy, Mental Illness and the Same Old Treatment
Reality is a fickle thing. If you don’t share the reality most others share, life is more difficult. Some people run with their “outsider” status and others fight to change and expand how their reality is seen and experienced. And still others do what they can to hide their different reality and quietly assimilate with […]
The Fantastic Curse of Epilepsy
I recently had the pleasure of reading a friend’s poetry memoir regarding his experiences with epilepsy. He supplements his poetic verse with evocative photographs, and it’s creative, honest, authentic and thought-provoking. Since he’s the second person I’ve recently read about who has broken their jaw (or general “face area”) in a seizure, it made me […]
Brain Update: To Fall or Not to Fall
“Are you afraid of falling?” “No.” The neurological specialist nodded thoughtfully and I redirected my thoughts to reflect on how “Stephen Hawking” fell a lot in the beginning of the movie The Theory of Everything. ☹️ The reason for this rant is how I went to the dreaded appointment with an ALS specialist because I […]
The Bank Doesn’t Care If Your House Is Haunted
Want to read my book? 😺
All Lab Rats Go To Heaven: An Epileptic Puts Her Foot Down
2020 has not been easy for anyone. After all, even those investors and tech CEOs who made a shit ton of money in 2020 off the public health crisis like war profiteers couldn’t just roll down to their local to get a beer or bottle of Cristal without assuming some risk. Tough times for us […]
It’s My Birthday and I’m in Space and Won’t Be Able to Make It This Year
My birthday is this week or… technically, it’s at the very beginning of next week. For the record, it’s 10-4… you know, like in the police code. In other words, “OKAY”. I was once in the back of a police car and they said “10-4” and I said, “That’s my birthday!” I love birthdays. And […]
Sometimes You Just Have to Take a Day or Two
Amiright?😺 And if that doesn’t fix what’s wrong you need to move to more extreme actions. I’m currently in between the two stages. And, as long as I’m asking questions, I’ll also query: does anyone else feel like they’re living two lives at once? When I hear the phrase “two lives at once” I first […]
To Be (Allergic) or Not To Be: The Small Saga Continues
This entry provides an update of my theory that my epilepsy medication is causing my body to physically fall apart. As an update, it’s now been a week of me being off Briviact, the epilepsy medication I’m theoretically allergic to, and also a week of being back on the only other medication (Levetiracetam) which prevents […]
Latest EEG Produced “Unexpected” Results
I started this blog last spring after experiencing my first ambulatory 72 hour EEG. Accordingly, this entry provides some updates for the health tests I’ve discussed here in previous posts and also includes my proposed take-it-into-my-own-hands solution. In addition, it presents a reminder that you never know what you’re going to get when trying new […]
Halloween in September and Improving My Street Cred
I have found the best pharmacy. And that isn’t street/code for anything… I mean I have genuinely found the best pharmacy. You know you’re old and/or sickly when you regard this as a major achievement. Maybe I’m so excited about my new pharmacy because I had such a terrible pharmacy before… so it’s relative. My […]
Joining the Dark Side
Well, the Bank Doesn’t Care if Your House Is Haunted is available as a lovely little DIY storybook which is printed and assembled here at home and bought through my Etsy shop… and now it’s also available on motherflipping Amazon as an e-book. That’s right, I’m continuing to join the 1990s. One day I may […]
“Is the American Health System That Bad?” Asked my Scottish/Not Scottish Friends. “Well, It Depends Who You Are.”
My husband David and I lived in Edinburgh, Scotland 2007-2010. Since his mom is 100% Scottish (though she resides in America but not in this photo because she came to visit us when we lived in Scotland), her family still lived there and we were therefore able to spend time with them. One time we […]
Yahtzee! Finding Medication That Doesn’t Make It Worse
Society has not been kind to epileptics. Society is often a psychotic bully so it’s no surprise. In earlier times, epileptics were worshipped/feared because people thought the seizures were due to gods speaking through a human and, being human, all a human could do was seize in response. But gods didn’t want to talk to […]
Ambulatory EEG Test #1 Result Day… I Am More Epileptic++ Than I Realized
Yesterday afternoon, my neurologist’s office called to tell me they downloaded the data from my first ambulatory EEG and, consequently, my neurologist wanted to see me ASAP. ASAP? Right away? Pronto? Okay. All right. Here we go. Okay. My heart dropped to the bottom of my guts. It’s not great when a medical professional calls […]
Brain Wars!!! 