Wow. It’s been a minute since I’ve posted anything on this site which I pay $120+ to maintain and don’t have the time to use… But I love the five of you who read and then comment… it’s like a really specialized form of social media as you’re not on my other social media or […]
Tag: brain
Social Work Self
My dear Bird Best Friend made me a feature item for my “desk” at work. I asked her to make me one because it reminds me of exactly how I feel in my new job as a state social worker: Crazed Overwhelmed Trying desperately to do good and spread joy and wellness but… I will […]
Spring Fever!
Okay. So we are in World War III. That’s pretty surreal and yet… in a way, I can’t help but ask “What took us so long?” For people who argue we are not in World War III, more countries are presently engaged in the Russia vs Ukraine War than in any other war. Even little […]
The Olympics of Every Day
Another week of being alive! Huzzah! That opening makes it sound like this week’s blog post is going to be exploding with good news and joy. I’ll do my best. Lately, my neurological realities have been on my mind and I’m trying to feel really grateful for the time I have. That’s not meant to […]
To Mastiff or Not To Mastiff
My epilepsy is stretching… Uh-oh. The fact that I’m aware of it stirring is alarming because it’s difficult to do under the cloud of medication I take to keep it still so, when I can sense its movement… I used to tell friends I was “happy” about having epilepsy because it served as a kind […]
My Own Private Shit Show: The Art of Coping
This week’s blog is focused on the events of my daily life and how I’m using perspective to prevent them from driving me completely insane. Letting Your Car Go We paid off our car. Which means we’ve given it permission to completely fall apart. You’re free, Marshmallow. While a mechanic was trying to figure out […]
The Darkness
There are some nights – tonight and last night – where I think “I’m just going to bed. This day has felt too terrible too long and it simply needs to end. Here’s to tomorrow.” But then tomorrow comes. And it feels the same. My fucking IUD removal (or Mirena crash which many doctors deny) […]
Milwaukee Paranormal Conference! 👻
When my amazing, award-winning journalist/writer friend Tea (check out his latest book which I highly recommend: https://thebookselfblog.wordpress.com/category/tea-krulos/) asked me to be a panelist in the Milwaukee Paranormal Conference in September: I said “Yes.” As part of this event, I’m also being given a vendor table so… this is all very amazing. Because, at this fine […]
I Am Batman
Little known fact that I am Batman. Though you may have had some clues given my being an orphan and certainly also having some unresolved issues in regard to the whole “being an orphan” thing. Yet, my lack of extreme wealth may have tipped you off that I’m not really the crime-fighting playboy cape-wielding superhero. […]
The Fantastic Curse of Epilepsy
I recently had the pleasure of reading a friend’s poetry memoir regarding his experiences with epilepsy. He supplements his poetic verse with evocative photographs, and it’s creative, honest, authentic and thought-provoking. Since he’s the second person I’ve recently read about who has broken their jaw (or general “face area”) in a seizure, it made me […]
Maybe I’ll Have a Happy Electrified Ending
This blog is a little late this week because I spent Monday and Tuesday doing “real” work aka editing a grant application (for a friend but she paid me my rate and it was the closest thing I’ve done to “real” work in a long time). So that felt good. That update is for those […]
Monday: Electrodes, Needles, Nerves, Static, a Bed and Four Men and an Epileptic Crammed in a Tiny Room
I’m not going to lie. That 👆 sounds like a very messed up porn. Gross. Which is why I don’t feel a lot of people could do an EMG test. Because if you’re not “good with” needles, or have an issue with claustrophobia or with being electrocuted, or being essentially naked on a bed in […]
Brain Update: To Fall or Not to Fall
“Are you afraid of falling?” “No.” The neurological specialist nodded thoughtfully and I redirected my thoughts to reflect on how “Stephen Hawking” fell a lot in the beginning of the movie The Theory of Everything. ☹️ The reason for this rant is how I went to the dreaded appointment with an ALS specialist because I […]
Going to Prison
Well, I was called back for a second interview for one of the two Education Director positions I had interviewed for the week before. I’m going to tell that story this week because my brain is consumed by thoughts of this role and as such I am incapable of thinking about anything else. A bad […]
All Lab Rats Go To Heaven: An Epileptic Puts Her Foot Down
2020 has not been easy for anyone. After all, even those investors and tech CEOs who made a shit ton of money in 2020 off the public health crisis like war profiteers couldn’t just roll down to their local to get a beer or bottle of Cristal without assuming some risk. Tough times for us […]
SYSTEM ALERT: Is What Happened to My Mom Going To Happen To Meeeeeeeeee?
Why have a blog if you can’t use it to openly discuss the potential manifestation of your absolute worst fear? 😺 Yeah. This is the blog post I really avoided writing and here it is. In this post I’ve tried to bedazzle my worst fear and all my fretting and freaking out with pictures and […]
When You Get the Results You Really Really Really Didn’t Want
For those of you reading this, I want to thank you for being a small audience for my survival memoir writing. In contrast to social media, having a blog is like having an audience who mostly want to be there. I’m sure a few of you just logged off because you’re all ohshit I can’t […]
Sometimes You Just Have to Take a Day or Two
Amiright?😺 And if that doesn’t fix what’s wrong you need to move to more extreme actions. I’m currently in between the two stages. And, as long as I’m asking questions, I’ll also query: does anyone else feel like they’re living two lives at once? When I hear the phrase “two lives at once” I first […]
To Be (Allergic) or Not To Be: The Small Saga Continues
This entry provides an update of my theory that my epilepsy medication is causing my body to physically fall apart. As an update, it’s now been a week of me being off Briviact, the epilepsy medication I’m theoretically allergic to, and also a week of being back on the only other medication (Levetiracetam) which prevents […]
Detached: Why This Epileptic Will Never Again Do Another Ambulatory EEG
Right. So I’ve had epilepsy since I was 12. That last sentence makes it sound like going from “no epilepsy” to “epilepsy” was a smooth transition… it was not. In any case, as an epileptic (who hid her epilepsy for twenty-five years out of fear of people’s rampant inability to cope with fear and who […]
Brain Wars!!! 