Tag: home

Detached: Why This Epileptic Will Never Again Do Another Ambulatory EEG

Right. So I’ve had epilepsy since I was 12. That last sentence makes it sound like going from “no epilepsy” to “epilepsy” was a smooth transition… it was not. In any case, as an epileptic (who hid her epilepsy for twenty-five years out of fear of people’s rampant inability to cope with fear and who […]

Anniversaries and Holidays Which Evoke All Emotions

When you experience loss, you suddenly have new days to dread. Or celebrate. It depends on how you’re coping with your loss. I honestly don’t know anyone who genuinely looks forward to a death anniversary like “OH WOW IT’S ALMOST THE DAY MOM DIED. I CAN’T WAIT TO CELEBRATE HER!!!” but I’m sure you’re out […]

Angels in a Not Yet Broken Phone

Five and a half years after being placed on hospice, my mom died in June 2017 at the age of 64. I organized the funeral and then the funeral happened and then I returned to our house and my husband David went to work and our house was just empty and quiet and I couldn’t […]

The Crash

My mom was given six months to live in January, 2012, diagnosed with moderate brain atrophy and frontotemporal degeneration (FTD). In September 2017, since she was still trucking but she could no longer speak, walk or perform tasks independently ALL WHILE BEING FULLY AWARE OF ALL THIS #mostcruelillness, she required very individualized care which facilities […]

Someone Never Stopped Coming Home

While it was still just David, Hemi Monster and I, our house, the first and only house for which we made mortgage payments, still felt busy. Even when any of us were by ourselves, we were never truly alone. That can be comforting and it can also be terrifying. On one afternoon, it was more […]

Ambulatory EEG #1: Getting Creative with Quarantine Activities

My hellish week of doing an ambulatory DIY EEG at home during the coronavirus quarantine