Networking Epileptic on Edge of Death Feeling Genuinely Cared For

Woohoo! Today I had my appointment with the new neurologist who I was only able to see thanks to a friend who pulled in a favor with a prominent neurologist who then made the connection and… networking may not get me employment but it got me the best neurologist I’ve had in perhaps forever! And […]

Wasps Are Mean and “Argh”

Today is the calendar reminder of how my mom died on this day three years ago. I also realized I hadn’t made a blog post for three days soooooooooo… I am also realizing that I’m not especially communicative or creative when focusing on staying cheery and achieving the regular goals during weeks I feel are […]

Anniversaries and Holidays Which Evoke All Emotions

When you experience loss, you suddenly have new days to dread. Or celebrate. It depends on how you’re coping with your loss. I honestly don’t know anyone who genuinely looks forward to a death anniversary like “OH WOW IT’S ALMOST THE DAY MOM DIED. I CAN’T WAIT TO CELEBRATE HER!!!” but I’m sure you’re out […]

“Is the American Health System That Bad?” Asked my Scottish/Not Scottish Friends. “Well, It Depends Who You Are.”

My husband David and I lived in Edinburgh, Scotland 2007-2010. Since his mom is 100% Scottish (though she resides in America but not in this photo because she came to visit us when we lived in Scotland), her family still lived there and we were therefore able to spend time with them. One time we […]

Is This Chemical Or Am I Authentically Feeling This Calm/Honest

Meds. 🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄 A few weeks ago I did a DIY, 72 hour EEG which revealed that I was experiencing an impressive number of seizures though I had no idea of this. But that could be just another seizure. My current neurologist believes that a lot of the actions I take are due to “seizures”. Not […]

Ambulatory EEG Test #1 Result Day… I Am More Epileptic++ Than I Realized

Yesterday afternoon, my neurologist’s office called to tell me they downloaded the data from my first ambulatory EEG and, consequently, my neurologist wanted to see me ASAP. ASAP? Right away? Pronto? Okay. All right. Here we go. Okay. My heart dropped to the bottom of my guts. It’s not great when a medical professional calls […]

Ambulatory EEG #1: Getting Creative with Quarantine Activities

My hellish week of doing an ambulatory DIY EEG at home during the coronavirus quarantine