Right. So I’ve had epilepsy since I was 12. That last sentence makes it sound like going from “no epilepsy” to “epilepsy” was a smooth transition… it was not. In any case, as an epileptic (who hid her epilepsy for twenty-five years out of fear of people’s rampant inability to cope with fear and who […]
Tag: brain
Life After
My mind is taking things into its own hands lately. I think this because on Tuesday I had some epileptic twitches in my face and through my fingers which aren’t supposed to happen. The electricity is breaking free. Oi. So I think my mind took care of that because I slept so deeply Tuesday night […]
Brad, If You’re Out There, I Have Your Viper Disc
I’ve recently realized I’ve been holding on to a lot of pointless guilt and it has to do with a stranger named Brad whose name is scrawled on the back of the disc golf disc I use… Long ago, I met David who I eventually married and David played disc golf. I had never disc-golfed […]
Genetics: Gene, Gene, Gene, Gene… GOOSE!
Pour a glass of something strong because I’m inviting you to embark upon a potentially life-changing genetic adventure with me. Or don’t read this and drink your whiskey in peace. Either way, my GP referred me to a genetic counselor last winter after I received somewhat dodgy mammogram results but the geneticists never returned any […]
When Life Gives You Lemons You Smile and Say “Thanks I Hate You Sometimes You’re a Jerk”
Right. With everything that has happened and which is actively happening, it seems my weak body is simply giving up. And my mind is absolutely disgusted with it. Watching “The Greatest Events of World War II in Color” on Netflix not only gives me the chills because we can explicitly see history repeating itself in […]
Looking for a Good time? Me Too.
Wellity. Got my MRI results. Ugh… lots of white matter lesions 😬 BUT there aren’t any more lesions than there were in 2015, when I had my last brain scan. Sooooooooooooooooooooooooooooooooo… I received the nicest call from my new neurologist’s nurse who I speak to almost daily and… well, it’s comforting that we don’t know […]
Brain Scans and Your Average Medical Male Monster
Holy cats. This blog post focuses on the monster who was my former neurologist and THE MONSTER CALLED ME WHEN I WAS WRITING THE FIRST DRAFT. Therefore, I have some LIVE ACTION news in this blog post. Exciting! But I’m getting ahead of myself. Right. So I’m an epileptic. Been epileptic since I was twelve. […]
“Is the American Health System That Bad?” Asked my Scottish/Not Scottish Friends. “Well, It Depends Who You Are.”
My husband David and I lived in Edinburgh, Scotland 2007-2010. Since his mom is 100% Scottish (though she resides in America but not in this photo because she came to visit us when we lived in Scotland), her family still lived there and we were therefore able to spend time with them. One time we […]
Is This Chemical Or Am I Authentically Feeling This Calm/Honest
Meds. 🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄 A few weeks ago I did a DIY, 72 hour EEG which revealed that I was experiencing an impressive number of seizures though I had no idea of this. But that could be just another seizure. My current neurologist believes that a lot of the actions I take are due to “seizures”. Not […]
Yahtzee! Finding Medication That Doesn’t Make It Worse
Society has not been kind to epileptics. Society is often a psychotic bully so it’s no surprise. In earlier times, epileptics were worshipped/feared because people thought the seizures were due to gods speaking through a human and, being human, all a human could do was seize in response. But gods didn’t want to talk to […]
Ambulatory EEG Test #1 Result Day… I Am More Epileptic++ Than I Realized
Yesterday afternoon, my neurologist’s office called to tell me they downloaded the data from my first ambulatory EEG and, consequently, my neurologist wanted to see me ASAP. ASAP? Right away? Pronto? Okay. All right. Here we go. Okay. My heart dropped to the bottom of my guts. It’s not great when a medical professional calls […]
Brain Wars!!! 