2020 has not been easy for anyone. After all, even those investors and tech CEOs who made a shit ton of money in 2020 off the public health crisis like war profiteers couldn’t just roll down to their local to get a beer or bottle of Cristal without assuming some risk. Tough times for us […]
Category: epilepsy
SYSTEM ALERT: Is What Happened to My Mom Going To Happen To Meeeeeeeeee?
Why have a blog if you can’t use it to openly discuss the potential manifestation of your absolute worst fear? 😺 Yeah. This is the blog post I really avoided writing and here it is. In this post I’ve tried to bedazzle my worst fear and all my fretting and freaking out with pictures and […]
Sometimes You Just Have to Take a Day or Two
Amiright?😺 And if that doesn’t fix what’s wrong you need to move to more extreme actions. I’m currently in between the two stages. And, as long as I’m asking questions, I’ll also query: does anyone else feel like they’re living two lives at once? When I hear the phrase “two lives at once” I first […]
Latest EEG Produced “Unexpected” Results
I started this blog last spring after experiencing my first ambulatory 72 hour EEG. Accordingly, this entry provides some updates for the health tests I’ve discussed here in previous posts and also includes my proposed take-it-into-my-own-hands solution. In addition, it presents a reminder that you never know what you’re going to get when trying new […]
Halloween in September and Improving My Street Cred
I have found the best pharmacy. And that isn’t street/code for anything… I mean I have genuinely found the best pharmacy. You know you’re old and/or sickly when you regard this as a major achievement. Maybe I’m so excited about my new pharmacy because I had such a terrible pharmacy before… so it’s relative. My […]
Genetics: Gene, Gene, Gene, Gene… GOOSE!
Pour a glass of something strong because I’m inviting you to embark upon a potentially life-changing genetic adventure with me. Or don’t read this and drink your whiskey in peace. Either way, my GP referred me to a genetic counselor last winter after I received somewhat dodgy mammogram results but the geneticists never returned any […]
When Life Gives You Lemons You Smile and Say “Thanks I Hate You Sometimes You’re a Jerk”
Right. With everything that has happened and which is actively happening, it seems my weak body is simply giving up. And my mind is absolutely disgusted with it. Watching “The Greatest Events of World War II in Color” on Netflix not only gives me the chills because we can explicitly see history repeating itself in […]
Looking for a Good time? Me Too.
Wellity. Got my MRI results. Ugh… lots of white matter lesions 😬 BUT there aren’t any more lesions than there were in 2015, when I had my last brain scan. Sooooooooooooooooooooooooooooooooo… I received the nicest call from my new neurologist’s nurse who I speak to almost daily and… well, it’s comforting that we don’t know […]
Brain Scans and Your Average Medical Male Monster
Holy cats. This blog post focuses on the monster who was my former neurologist and THE MONSTER CALLED ME WHEN I WAS WRITING THE FIRST DRAFT. Therefore, I have some LIVE ACTION news in this blog post. Exciting! But I’m getting ahead of myself. Right. So I’m an epileptic. Been epileptic since I was twelve. […]
Wasps Are Mean and “Argh”
Today is the calendar reminder of how my mom died on this day three years ago. I also realized I hadn’t made a blog post for three days soooooooooo… I am also realizing that I’m not especially communicative or creative when focusing on staying cheery and achieving the regular goals during weeks I feel are […]
GOOD MORNING 🛎
Where am I? Are the police busting down our door? And then… what day is it? If the police are busting down our door, I want to know what day it is. That was the cognitive scene today at exactly six in the morning. It was a bit surreal as a loud bang woke my […]
Is This Chemical Or Am I Authentically Feeling This Calm/Honest
Meds. 🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄 A few weeks ago I did a DIY, 72 hour EEG which revealed that I was experiencing an impressive number of seizures though I had no idea of this. But that could be just another seizure. My current neurologist believes that a lot of the actions I take are due to “seizures”. Not […]
Witnessing Tonic-Clonic, Formerly Known as Grand Mal, Seizures
There is nothing a parent can really do to stop it or make it better while a grand mal/tonic-clonic seizure is happening. But there has been progress.
Being Thirteen and WTF Are Temporal Lobe Seizures?
I attended a free private Lutheran school from kindergarten through 8th grade. For 9th grade all us St. Johns kids had to transfer schools because the grades in our school ran out. Some of my good friends left for junior high after 6th grade and were really happy to be “liberated” but I was content […]
Yahtzee! Finding Medication That Doesn’t Make It Worse
Society has not been kind to epileptics. Society is often a psychotic bully so it’s no surprise. In earlier times, epileptics were worshipped/feared because people thought the seizures were due to gods speaking through a human and, being human, all a human could do was seize in response. But gods didn’t want to talk to […]
Ambulatory EEG Test #1 Result Day… I Am More Epileptic++ Than I Realized
Yesterday afternoon, my neurologist’s office called to tell me they downloaded the data from my first ambulatory EEG and, consequently, my neurologist wanted to see me ASAP. ASAP? Right away? Pronto? Okay. All right. Here we go. Okay. My heart dropped to the bottom of my guts. It’s not great when a medical professional calls […]
Ambulatory EEG #1: Getting Creative with Quarantine Activities
My hellish week of doing an ambulatory DIY EEG at home during the coronavirus quarantine
Brain Wars!!! 