Words fail. That kind of thinking is detrimental for a blog. In any case, I think my logistics job is affecting my not-job-related memory, soul and verbal speech… or else… it’s not the super stressful job and, rather, the FTD/ALS is kicking in. I hope not because my job does not offer health insurance, and […]
Tag: epilepsy
The Drama of Buying a Boarding House
David and I have been house-hunting for a couple years (as soon as we learned we had accidentally moved into a crazy violent neighborhood) but the current housing market has made it difficult to buy a house and move. Friends have made ten, thirteen, fifteen offers on houses only to have each rejected. Dire situation. […]
Milwaukee Paranormal Conference! 👻
When my amazing, award-winning journalist/writer friend Tea (check out his latest book which I highly recommend: https://thebookselfblog.wordpress.com/category/tea-krulos/) asked me to be a panelist in the Milwaukee Paranormal Conference in September: I said “Yes.” As part of this event, I’m also being given a vendor table so… this is all very amazing. Because, at this fine […]
My Final Blog Post…?
Hello to anyone reading this blog and who has perhaps even read other blog posts! Hello hello hello! I’ve started a Real Job. It’s the first time I’ve worked for a) not a cause b) not an educational establishment and c) for a for-profit start-up which essentially benefits the wealthy. It’s making me feel a […]
Epilepsy, 3 Hospitals, 7 Vials of Blood and a Key Lime Martini
So… how was your Monday? 😺 Mine turned out to be a Big Day. Now in this odd little blog, I tell a lot of random stories. But lately I’ve strayed away from my health issues (epilepsy etal.) because I’ve been enjoying a blissful break from hospitals. Yet, this all changed Monday and now you’re […]
Ask a T-Rex
Really though. What the hell can you do. I asked my friend Rex this question. His answer now and always is: “Kill and eat it.” While effective as a comprehensive life approach back in prehistoric times, this was not the suggestion I needed which would help me now in these modern times. Also, I’m pretty […]
I Am Batman
Little known fact that I am Batman. Though you may have had some clues given my being an orphan and certainly also having some unresolved issues in regard to the whole “being an orphan” thing. Yet, my lack of extreme wealth may have tipped you off that I’m not really the crime-fighting playboy cape-wielding superhero. […]
Stigma: Epilepsy, Mental Illness and the Same Old Treatment
Reality is a fickle thing. If you don’t share the reality most others share, life is more difficult. Some people run with their “outsider” status and others fight to change and expand how their reality is seen and experienced. And still others do what they can to hide their different reality and quietly assimilate with […]
The Fantastic Curse of Epilepsy
I recently had the pleasure of reading a friend’s poetry memoir regarding his experiences with epilepsy. He supplements his poetic verse with evocative photographs, and it’s creative, honest, authentic and thought-provoking. Since he’s the second person I’ve recently read about who has broken their jaw (or general “face area”) in a seizure, it made me […]
Maybe I’ll Have a Happy Electrified Ending
This blog is a little late this week because I spent Monday and Tuesday doing “real” work aka editing a grant application (for a friend but she paid me my rate and it was the closest thing I’ve done to “real” work in a long time). So that felt good. That update is for those […]
Monday: Electrodes, Needles, Nerves, Static, a Bed and Four Men and an Epileptic Crammed in a Tiny Room
I’m not going to lie. That 👆 sounds like a very messed up porn. Gross. Which is why I don’t feel a lot of people could do an EMG test. Because if you’re not “good with” needles, or have an issue with claustrophobia or with being electrocuted, or being essentially naked on a bed in […]
Curs-ed and Coping
Yeah, so it’s that really terrible time of year for me. The Death Anniversary time of year… oddly, my family died or were born in the first couple weeks of March. And my crisis of confidence continues as I was recently told for the nth time I’m “overqualified” and “will leave after a month” if […]
Hey Brain Wars Subscribers… Got a Minute? 😺
TOMORROW (THURSDAY 3/3/21) IS PITCH MADNESS! Otherwise known at #PITMAD. And I am once again pitching my graphic memoir WHAT DOESN’T KILL YOU MAKES YOU WEIRD AT PARTIES. UPDATE: Thank you so much for your help! Special shout out to Naomi, Gabi, Meredith and Jesse. Here are tomorrow’s pitches: #1 Diagnosed w epilepsy at age […]
Brain Update: To Fall or Not to Fall
“Are you afraid of falling?” “No.” The neurological specialist nodded thoughtfully and I redirected my thoughts to reflect on how “Stephen Hawking” fell a lot in the beginning of the movie The Theory of Everything. ☹️ The reason for this rant is how I went to the dreaded appointment with an ALS specialist because I […]
If I Was Rich, I’d Have To Get My Cardio Elsewhere: A Shoveling Tale
Milwaukee got pummeled by snow this weekend (church was canceled even) which meant the weekend was largely spent shoveling. I like shoveling because it provides me with cardio and the gratification that comes with putting work in and having it pay off. Immediately. Our apartment is on a corner so, as we are to shovel […]
Going to Prison
Well, I was called back for a second interview for one of the two Education Director positions I had interviewed for the week before. I’m going to tell that story this week because my brain is consumed by thoughts of this role and as such I am incapable of thinking about anything else. A bad […]
Double Life of Sorts
I have to say, as I prep for/engage in two job interviews for positions this week, I also have this little voice inside which says: “What’s the point? You’re doomed.” Well, it’s not quite that dramatic but that’s essentially its core messaging. Why? If you’re a new reader, I received the death toll of genetic […]
A Prison of Possibilities
Welcome to 2021… in risk of overusing the same material, this IT Crowd gif perfectly represents how I’m feeling about 2021: Yesterday, I sat down to take a break in my Monday routine which involves doing last week’s laundry and the weekly domestic hard-clean of our apartment. I figure that, if I’m not making any […]
It’s Happening! It’s the END!!!!!
Wellity, wellity. 2020 is coming to an end. Hypothetically. There is still time for the world to end before 2021. But hopefully that won’t happen. After all, we each likely have hard-wired high, misguided hopes for the new year. Because we have to. Survival requires a little hope, sporadically and strategically spread out over our […]
All Lab Rats Go To Heaven: An Epileptic Puts Her Foot Down
2020 has not been easy for anyone. After all, even those investors and tech CEOs who made a shit ton of money in 2020 off the public health crisis like war profiteers couldn’t just roll down to their local to get a beer or bottle of Cristal without assuming some risk. Tough times for us […]
Brain Wars!!! 