This post is about death, grief, loss, unexplained happenings and also murals… Fair warning and, if you’re here for the murals, just scroll down to the end. The Context/Background So I wrote a ghostly storybook ⬇️ And in this book I summarize all the scary, unexplained and sometimes magical stuff which happened when my husband […]
Tag: perspective
Brain Update: To Fall or Not to Fall
“Are you afraid of falling?” “No.” The neurological specialist nodded thoughtfully and I redirected my thoughts to reflect on how “Stephen Hawking” fell a lot in the beginning of the movie The Theory of Everything. ☹️ The reason for this rant is how I went to the dreaded appointment with an ALS specialist because I […]
Helping: A Dark Art
I’m one of those people who feels compelled to help other people. If I don’t feel like I’m helping other people, I feel as if I have no purpose. And this is why I often have had jobs which paid very little money because helping people is not what people do to make money. In […]
If I Was Rich, I’d Have To Get My Cardio Elsewhere: A Shoveling Tale
Milwaukee got pummeled by snow this weekend (church was canceled even) which meant the weekend was largely spent shoveling. I like shoveling because it provides me with cardio and the gratification that comes with putting work in and having it pay off. Immediately. Our apartment is on a corner so, as we are to shovel […]
Happy New Year! 🏴☠️🏳
For us, it’s still 2020. Feeling a bit bored and also somewhat doom and gloom However, we have a plan. 🎃 As it’s a pandemic and also because we are old, my husband and I decided that we are going to get dressed 😬 and drive to the grocery store (we have a gift card […]
It’s Happening! It’s the END!!!!!
Wellity, wellity. 2020 is coming to an end. Hypothetically. There is still time for the world to end before 2021. But hopefully that won’t happen. After all, we each likely have hard-wired high, misguided hopes for the new year. Because we have to. Survival requires a little hope, sporadically and strategically spread out over our […]
The World Seems to Have an Attitude Problem
2020 has been shit. We’re all aware of this. It’s the one reality we all share. No matter who you are, you have been affected by coronavirus in some horrible way. And it’s going to continue into 2021 but at least it won’t be 2020. No, it will be something else. The same shit in […]
All Lab Rats Go To Heaven: An Epileptic Puts Her Foot Down
2020 has not been easy for anyone. After all, even those investors and tech CEOs who made a shit ton of money in 2020 off the public health crisis like war profiteers couldn’t just roll down to their local to get a beer or bottle of Cristal without assuming some risk. Tough times for us […]
Just in Time For Halloween! A Villainous Threat or… Voting 2020?
What’s scarier than Halloween? Politics. And Voting 2020 is getting into the Halloween spirit. Now I don’t order stuff online often (because it will be stolen if left on our stoop for two seconds #milwaukeeproblems), but when I do… it’s recently and for this All Hallow’s Eve Vampire Dinner which I’ve been planning. Yet, last […]
When You Get the Results You Really Really Really Didn’t Want
For those of you reading this, I want to thank you for being a small audience for my survival memoir writing. In contrast to social media, having a blog is like having an audience who mostly want to be there. I’m sure a few of you just logged off because you’re all ohshit I can’t […]
Working from Street: “Dile B for Birder”
So, for two weeks, I’ll be outside. 😺 Long story shorter, a couple months ago my husband @muellerlowlife applied to do a mural for the city of West Allis as part of a project led by Wallpapered City, LLC, a local consultancy firm which sources artists for large-scale murals. Sooooooo… my other half (“David”) diligently […]
Looking for a Good time? Me Too.
Wellity. Got my MRI results. Ugh… lots of white matter lesions 😬 BUT there aren’t any more lesions than there were in 2015, when I had my last brain scan. Sooooooooooooooooooooooooooooooooo… I received the nicest call from my new neurologist’s nurse who I speak to almost daily and… well, it’s comforting that we don’t know […]
Anniversaries and Holidays Which Evoke All Emotions
When you experience loss, you suddenly have new days to dread. Or celebrate. It depends on how you’re coping with your loss. I honestly don’t know anyone who genuinely looks forward to a death anniversary like “OH WOW IT’S ALMOST THE DAY MOM DIED. I CAN’T WAIT TO CELEBRATE HER!!!” but I’m sure you’re out […]
“Is the American Health System That Bad?” Asked my Scottish/Not Scottish Friends. “Well, It Depends Who You Are.”
My husband David and I lived in Edinburgh, Scotland 2007-2010. Since his mom is 100% Scottish (though she resides in America but not in this photo because she came to visit us when we lived in Scotland), her family still lived there and we were therefore able to spend time with them. One time we […]
The Beyond
On the first night we viewed and then signed the papers to buy our Madison house, it felt haunted. When I went upstairs to turn off the hallway light, I felt the air thicken and move around me in an unnatural way. Thrilled, I ran downstairs, delighted that we were going to buy a haunted […]
Ambulatory EEG Test #1 Result Day… I Am More Epileptic++ Than I Realized
Yesterday afternoon, my neurologist’s office called to tell me they downloaded the data from my first ambulatory EEG and, consequently, my neurologist wanted to see me ASAP. ASAP? Right away? Pronto? Okay. All right. Here we go. Okay. My heart dropped to the bottom of my guts. It’s not great when a medical professional calls […]
Ambulatory EEG #1: Getting Creative with Quarantine Activities
My hellish week of doing an ambulatory DIY EEG at home during the coronavirus quarantine
Brain Wars!!! 