Why have a blog if you can’t use it to openly discuss the potential manifestation of your absolute worst fear? 😺 Yeah. This is the blog post I really avoided writing and here it is. In this post I’ve tried to bedazzle my worst fear and all my fretting and freaking out with pictures and […]
Tag: epilepsy
Well, We Introverts Can’t All Be Normal and Well-Adjusted 😺
I spend most of my time being a recluse and playing Sodoku. I’m an epileptic introvert who is now terrified of her brain degenerating so this is a pragmatic way to spend my time, in my electrified view. At the same time, I can’t play Sodoku all the time so I also spend a lot […]
When You Get the Results You Really Really Really Didn’t Want
For those of you reading this, I want to thank you for being a small audience for my survival memoir writing. In contrast to social media, having a blog is like having an audience who mostly want to be there. I’m sure a few of you just logged off because you’re all ohshit I can’t […]
It’s My Birthday and I’m in Space and Won’t Be Able to Make It This Year
My birthday is this week or… technically, it’s at the very beginning of next week. For the record, it’s 10-4… you know, like in the police code. In other words, “OKAY”. I was once in the back of a police car and they said “10-4” and I said, “That’s my birthday!” I love birthdays. And […]
Sometimes You Just Have to Take a Day or Two
Amiright?😺 And if that doesn’t fix what’s wrong you need to move to more extreme actions. I’m currently in between the two stages. And, as long as I’m asking questions, I’ll also query: does anyone else feel like they’re living two lives at once? When I hear the phrase “two lives at once” I first […]
To Be (Allergic) or Not To Be: The Small Saga Continues
This entry provides an update of my theory that my epilepsy medication is causing my body to physically fall apart. As an update, it’s now been a week of me being off Briviact, the epilepsy medication I’m theoretically allergic to, and also a week of being back on the only other medication (Levetiracetam) which prevents […]
Latest EEG Produced “Unexpected” Results
I started this blog last spring after experiencing my first ambulatory 72 hour EEG. Accordingly, this entry provides some updates for the health tests I’ve discussed here in previous posts and also includes my proposed take-it-into-my-own-hands solution. In addition, it presents a reminder that you never know what you’re going to get when trying new […]
Halloween in September and Improving My Street Cred
I have found the best pharmacy. And that isn’t street/code for anything… I mean I have genuinely found the best pharmacy. You know you’re old and/or sickly when you regard this as a major achievement. Maybe I’m so excited about my new pharmacy because I had such a terrible pharmacy before… so it’s relative. My […]
MENTAL HEALTH Requires … Listening to Bauhaus in My Creepy Basement with My Friend Chair
I AM FINALLY GETTING A CHEST X-RAY AND ALSO BLOODWORK! 🙌 Wooooohooooooo!!! I am so old and decrepit I regard this as a major accomplishment. I remember when winning an award or finishing my degree gave me the same sense of accomplishment. It’s a bit sad but… how does it go? Life is what happens […]
Detached: Why This Epileptic Will Never Again Do Another Ambulatory EEG
Right. So I’ve had epilepsy since I was 12. That last sentence makes it sound like going from “no epilepsy” to “epilepsy” was a smooth transition… it was not. In any case, as an epileptic (who hid her epilepsy for twenty-five years out of fear of people’s rampant inability to cope with fear and who […]
An American’s Entitled Perspective on Scotland 2007-2010 😂
When most of the world announced that they would not be allowing Americans to travel to their countries due to our really poor handling of the coronavirus, I imagine a cheer rose from the crowd in at least a couple Scottish pubs. I’m sure there were more cheers in more pubs but I can only […]
Security Bot, Ken, Having a Hard Time Like the Rest of Us
I think our security bot Ken is feeling insecure. He can join the club. Or maybe it’s just Monday again and, while reliable, its arrival doesn’t help morale. It’s especially weird because I don’t even have a “regular weekday work schedule” so I have no idea what my problem with this day is. Last week […]
Life After
My mind is taking things into its own hands lately. I think this because on Tuesday I had some epileptic twitches in my face and through my fingers which aren’t supposed to happen. The electricity is breaking free. Oi. So I think my mind took care of that because I slept so deeply Tuesday night […]
Genetics: Gene, Gene, Gene, Gene… GOOSE!
Pour a glass of something strong because I’m inviting you to embark upon a potentially life-changing genetic adventure with me. Or don’t read this and drink your whiskey in peace. Either way, my GP referred me to a genetic counselor last winter after I received somewhat dodgy mammogram results but the geneticists never returned any […]
Hell Today
I’m not sure if anyone else thinks “Have I gone too far?” as much as I do in regard to really insignificantly small actions. But I do enjoy the thought of my former keyboard’s space bar being in the ninth circle of hell. I never let my inability to draw hold me back either. Yeah, […]
When Life Gives You Lemons You Smile and Say “Thanks I Hate You Sometimes You’re a Jerk”
Right. With everything that has happened and which is actively happening, it seems my weak body is simply giving up. And my mind is absolutely disgusted with it. Watching “The Greatest Events of World War II in Color” on Netflix not only gives me the chills because we can explicitly see history repeating itself in […]
Looking for a Good time? Me Too.
Wellity. Got my MRI results. Ugh… lots of white matter lesions 😬 BUT there aren’t any more lesions than there were in 2015, when I had my last brain scan. Sooooooooooooooooooooooooooooooooo… I received the nicest call from my new neurologist’s nurse who I speak to almost daily and… well, it’s comforting that we don’t know […]
Brain Scans and Your Average Medical Male Monster
Holy cats. This blog post focuses on the monster who was my former neurologist and THE MONSTER CALLED ME WHEN I WAS WRITING THE FIRST DRAFT. Therefore, I have some LIVE ACTION news in this blog post. Exciting! But I’m getting ahead of myself. Right. So I’m an epileptic. Been epileptic since I was twelve. […]
Moving and the Struggle to Let Go/Avoid Having to Let Go
Aha! Book production is getting a bit more streamlined! My husband has taken over this end of the process as he doesn’t have epilepsy and his hands work better for him. I am secretly pleased that we use a typewriter as the binding weight. Yeah, we have a vintage typewriter which we haul around with […]
Rainbow Ghosts Everywhere
Well, I’m writing this on Sunday morning. Today I was woken by fireworks at 7 A.M. as they tend to start later on Sunday mornings which is appreciated. Earlier, I woke at my unnaturally early “dawn time” and felt “hell no” because extra sleep time was needed as last night I was disproportionately exhausted because […]
Brain Wars!!! 